![]() ![]() What is the lived experience of adults with systemic scleroderma, and 2. Two questions guided the current research: 1. This qualitative study aims to describe and understand the experience of health-within-illness from the perspective of adults living with systemic scleroderma in Quebec, Canada. Wellness is determined by comparing its experience to what is known and understood about illness and reciprocally, illness is determined by its comparison to wellness. This is a result of a specific and quite unique ten-year experience in São Paulo in Brazil ensuing from two-pronged set of actions: (i) research interests of the author in pragmatics and sociology of language and (ii) experience accrued by writing of a literary essay, working with an NGO (AHPAS) that provides transport for very sick cancer patients, and convening a Conference examining issues related to coping with illness, grieving and suffering.Īccording to Donnelly, people with chronic illness live in ̒the dual kingdoms of the well and the sick.̒̕ Therefore, the illness experience contains elements of both illness and wellness. ![]() This article based on a study case involing personal struggle of a young cancer patient that became disabled because of an amputation, put forwards the idea of adoption of a wide-ranging concept of impairment/disability, related to human frailty, and less as a precondition of success for Brazilian inclusion public policies but more as a guarantee of a solidary society, and consequently healthier (in its broadest sense). Perhaps, what is more important than finding a ‘cure’ for chronic illnesses, might be to create conditions to minimize the suffering created by a disability so that every one is able to find his/her own way of exercising humanity, which is always and irremediably fragile. Various people acquire disabilities on account of some illness, similarly, many others acquire chronic health problems on account of some disability. The proposed ways of differentiating them are not obvious: they are more of socially (and discursively) construed differences rather than ‘natural differences’. ![]() The relationship between disease and disability is challenging. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |